My Sickle Life: Still I Stand.

This is me
And who I will always be
My life
This is not a story nor a dirge
This is not a poem
A rhyme nor a prose
This is a thank you note
A celebration of life.

Sickle cell anaemia
The condition that tainted my eyes
With a bright golden hue
One that makes an ordinary migraine
Feel like a damn rocket is being launched in my head
Levels of skeletal and joint pains
You couldn’t imagine
Anaemia
Pneumonia
Angina
Kidney infections
Battered my body but my heart remained intact.

You may choose to distant yourself after reading this post
Be my guest
You wouldn’t be the first
Nor the last
“Sorry, I cannot date a sickler”
Whatever that means!

I am not normal
I am not the guy you see in your dreams
Your fantasy
Not built with muscles and packs
Not thick tall like they say
Tall yes,  but definitely not thick
What I lack in physical strength
I make up for in other areas
Smart as a whip- I can charm the pants off your grandma
Humour, emotional stability
And oh, very handsome
I am not normal
I don’t care to be
What’s normal anyway?

I write not for your pity,  I don’t need it
Neither am I soliciting for tears or grief
I write to show strength
A sign of joy
Of hope
Of love
My few friends, they’re awesome
My family is a blessing
Cos’ of their care and support
I am still here
27 and counting.
STILL I STAND.

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Still I Stand. Eugene Donkoh.

Written and submitted to My Sickle Life by: Eugene Donkoh.
Eugene is a Health Safety and environment officer in Takoradi. He is a person living with Sickle Cell Disease who believes dwelling on the struggles only slow you down. His advice is to live life to the fullest and trust God to be your guide.
Still I Stand was written on his 27th birthday.

My Sickle Life is a series that provides a platform for persons living with sickle cell disease, their relatives, friends and anybody who has experience with the sickle life to share it for the purposes of awareness creation and stigmatization prevention.

Please submit your article by email to sicklelifemd@gmail.com or through our article submission form.

Thank you.

3 thoughts on “My Sickle Life: Still I Stand.

  • I think the public should be well educated on sickle cell anaemia. Advise those with relatives who may be having de condition and how they should choose their spouse. I have heard of relationship being broken because of this condition. It makes such people feel bad and neglected.

  • I wonder why pastors/marriage counsellors take prosecutorial interest in someone sickling status nowadays. It’s just one of the many variations of humanity that exist, unfortunately prone nice people to adverse stigmatization. Sickle cell disease can be manage with nutrition and lifestyle. We have to dreadful of other incurable diseases and stop these sickle cell paranoia

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