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SICKLE LIFE PATIENT SUPPORT GROUP.

Ensuring healthy lives and promoting well-being for all at all ages is a task that requires all stakeholders in the health sector to take active roles to achieve. With specific focus on maternal and child health as well as HIV/AIDS, malaria and other diseases, the Sustainable Development Goals (SDG) serve as a guide to cause Read more about SICKLE LIFE PATIENT SUPPORT GROUP.[…]

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SICKLE LIFE PATIENT SUPPORT GROUP

#TeamSickleLife recognises the great need for a support group for persons living with Sickle Cell Disease in and outside Ghana and have thus taken up the mantle. We present to you The Sickle Life Patient Support Group. With the aim of addressing the specific concerns of persons living with Sickle Cell Disease and their care givers Read more about SICKLE LIFE PATIENT SUPPORT GROUP[…]

MENTORS MATTER!

Dr. Buadu (Sickle Life) and Medical Students (facing camera) interacting with clients at the adolescent clinic. ​Living with a chronic medical condition is quite difficult for children and especially difficult through adolescence as young people transition into adulthood. We often begin to wonder why we are different, why us in particular, why so many medications to Read more about MENTORS MATTER![…]

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Sickle Life Mentorship Project Volunteer Form.

The Sickle Life Mentorship Project comes off on Saturday 26th August 2017.  Our aim is to assist in the transition of teenagers living with sickle cell disease from the paediatric to adult Sickle Cell Clinic at Korle-Bu Teaching Hospital.  Activities include talks on: SCD and medication adherence. Development and body changes. School life and peer pressure. Read more about Sickle Life Mentorship Project Volunteer Form.[…]

​USA- FDA Approves New Treatment for Sickle Cell Disease.

(This article was first published on Medscape.) The US Food and Drug Administration (FDA) has approved L-glutamine oral powder (Endari, Emmaus Medical Inc) to reduce severe complications of sickle cell disease in patients aged 5 years and older with the disorder. This is the first approval for the rare disorder in almost 20 years. “Endari Read more about ​USA- FDA Approves New Treatment for Sickle Cell Disease.[…]

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WORLD SICKLE CELL DAY, 2017- Know Your Sickle Status Now.

World Sickle Cell Day is commemorated annually on the 19th June to draw attention to Sickle Cell Disease globally. In 2017, The Information Services Department (ISD), Obuasi district organized a number of events from Monday 19th to Friday 23rd June 2017 to draw attention to this condition within the district. Under the theme, “KNOW YOUR Read more about WORLD SICKLE CELL DAY, 2017- Know Your Sickle Status Now.[…]

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WORLD SICKLE CELL DAY 2017- Activities. 

Wednesday, 7th June 6pm- Radio, Obuasi Tuesday 13th June  Health talk and free Sickle Cell Screening (Hb Electophoresis Tests) Organised by Sickle Cell, Korle-Bu Teaching Hospital Odorgono Secondary School  500 students and staff tested ​ Saturday 17th June 5pm- Class FM Monday 19th June  8am- MultiTv  10am-Adom Fm  11am- TV 3 (Documentary Recording)  5pm- Radio Read more about WORLD SICKLE CELL DAY 2017- Activities. […]

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Sickle Life- Review. 

​Republished with permission of Daniel Nyakutsey. This article was first published by Daniel Nyakutsey via www. sicklecellwelfareforum.com on December 26, 2016. I visit Ghana when I can to at the very least enjoy the sun, sea, the tasty food and as a reality check for myself. On my most recent trip, I had the honour Read more about Sickle Life- Review. […]

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2016.

“The heart of a volunteer is not measured in size, but by the depth of the commitment to make a difference in the lives of others.” ~ DeAnn Hollis. 2016 was truly an impressive year for Sickle Life in many respects. Beyond the formalization of our activities as a non-governmental organization in Ghana and successful Read more about 2016.[…]

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AWANA CAMP 2016.

At the end of 2016, among the activities we undertook, Sickle Life was honoured to interact with members of the AWANA CLUB at a health talk organized at their annual camp. This talk, on Sickle Cell Disease, was on Friday 30th January 2016 at the Pope John Senior High School and Junior Seminary, Koforidua (the Read more about AWANA CAMP 2016.[…]

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WINTER HAS COME!!!

Well, not really and no this is not a Game of Thrones review. More accurately the harmattan has arrived. If you live in West Africa though, this is all the winter you get. The harmattan, which begins from November and ends in March is a dry dusty wind which blows from the Northeast and West Read more about WINTER HAS COME!!![…]

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World Sickle Cell Day Report- 2016.

    Hello everyone, it’s been quite an interesting week in Ghana. Congratulations to Ghanaians for generally peaceful elections and the ongoing transition process. We at Sickle Life are earnestly looking forward to 2017 with all the opportunities it holds. First however, we need to address the elephant in the room, The 2016 World Sickle Read more about World Sickle Cell Day Report- 2016.[…]

Team Care Slashes Deaths From Pregnancy In Sickle Cell Anemia in Ghana. 

 http://www.forbes.com/sites/elaineschattner/2016/12/04/team-care-slashes-the-maternal-death-rate-in-sickle-cell-anemia/#53d8a64134c1 Life saving Sickle Cell Research making real impact in Ghana.  We are glad to see this work published and have quantifiable outcomes that improve the lives of persons living with Sickle Cell Disease. We hope for more of such interventions across several medical disciplines to further improve the quality of life of patients. Congratulations Read more about Team Care Slashes Deaths From Pregnancy In Sickle Cell Anemia in Ghana. […]

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August – November 2016

    Hello everyone! It’s been a while hasn’t it? We trust you have been well. For all our followers via sicklelife.org only, it may seem like an eternity but we assure you, Sickle Life has been working behind the scenes to create awareness about Sickle Cell Disease. Do follow us on Social media (Facebook-Sickle Life, Instagram/ Twitter- Read more about August – November 2016[…]

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Adeiso Health Centre Outreach.

Sickle Life was invited by Millennium Christian Women’s Network to give a talk on Sickle Cell Disease and offer medical care to the people of Adieso. VENUE: ADEISO HEALTH CENTRE DATE: 11 JUNE 2016 TIME: 10am – 4pm Education and Information about Sickle Cell Disease to help you make an informed life choice. #SickleLife  

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World Sickle Cell Day, June 19th.

The World Health Organization (WHO)  through World Health Days draws attention to various medical conditions and other public health concerns. Examples of these include World Malaria, Breast Feeding, AIDS, Blood Donor and Toilet Day to mention a few. World Health Days and the global commemorations associated with them, draw attention to specific health needs and may Read more about World Sickle Cell Day, June 19th.[…]

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Folic Acid.

Sickle Cell Disease is characterised by a reduction in the lifespan of Red Blood Cells. These Red Blood Cells are responsible for carrying oxygen to various parts of the body. Normal Red Blood Cells have a lifespan of about 120 days. In patients with Sickle Cell Disease/Anaemia, this is reduced. The Red Blood Cells breakdown Read more about Folic Acid.[…]

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THE SICKLING TEST.

Narratives (after a sickling test): Health worker: Your sickling test is positive, which means you have Sickle Cell Disease. Patient: That explains why I am always ill. Health worker: Your sickling test is positive, which means you have Sickle Cell Disease. Patient: Are you sure, but I hardly fall sick. Health worker: Your sickling test is Read more about THE SICKLING TEST.[…]

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Health Talk-Resurrection Presbyterian Church.

On Sunday the 17th of April 2016, Sickle Life was privileged to fellowship with members of the Resurrection Presbyterian Church, Agbogba on the first day of their Young Adults Fellowship (YAF) week celebration. This was a health talk on the topic Sickle Cell Disease. It was delivered by Sickle Life founder, Dr. Sefakor Enam Bankas. Read more about Health Talk-Resurrection Presbyterian Church.[…]

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FEDERATION OF GHANA CATHOLIC HEALTH TRAINEES CONGRESS 2016.

The Federation of Ghana Catholic Health Trainees (FGCHT) is an  association comprising students of all Health institutions in Ghana who identify with the Catholic faith and doctrines. Every year since its formation in 1999, members assemble in one of its member institutions to undertake most primarily, a major project of germane National health interest. This Read more about FEDERATION OF GHANA CATHOLIC HEALTH TRAINEES CONGRESS 2016.[…]

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HAEMOGLOBIN VARIANT ESTIMATION.

Requests for haemoglobin variant estimation are common in health care delivery in Ghana. This investigation is generally referred to as Hb electrophoresis because of the method employed in testing. The principle of this test is based on separation of blood components based on the molecular mass (weight) of substances and their speed through a medium Read more about HAEMOGLOBIN VARIANT ESTIMATION.[…]

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My Sickle Life: Preparing For The Unexpected.

Living with a chronic medical condition like Sickle Cell Disease is a very tedious balancing act. There are several variables and too many moving parts which make staying healthy almost impossible. Every action must be taken with complete consideration of its potential to cause illness or affect health. Will it rain tomorrow, will I have Read more about My Sickle Life: Preparing For The Unexpected.[…]

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The Sompre Experience.

I was forced to believe INSPYA had been in existence for more than 10 years. The connection was great, too many nice people under one umbrella~ Nii Otto (INSPYA) The Sompre Project organized by INSPYA Ghana was an amazing experience for the Sickle Life team. Collaborating with the Jessy Dadzie Foundation as health partners, the Read more about The Sompre Experience.[…]

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My Sickle Life: The Pain.

I woke up in the middle of the night drenched in sweat, in excruciating pain. The pain was located over the centre of my chest and I knew this was definitely a bad sign. The night was about to get long. Really long. Having experienced this several times before, I braced myself for the worst. Read more about My Sickle Life: The Pain.[…]

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THE SOMPRE PROJECT.

INSPYA (Inspiring Youth Achievement) in line with its aim of encouraging, supporting and inspiring young people to achieve their ambitions is embarking on a mentorship and education trip to Sompre and its surrounding communities within the Wassa Amenfi West District of the Western Region of Ghana from Thursday the 17th of March to Sunday 20th Read more about THE SOMPRE PROJECT.[…]

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#SickleCellAwareness

A group of medical students from the University of Ghana School of Medicine and Dentistry engendered by the loss of their patient to Sickle cell disease started the #SickleCellAwareness campaign. Sickle Life, like many others concerned about sickle cell disease in Ghana, joined the campaign and saw it rise to a twitter trend on Saturday 6th Read more about #SickleCellAwareness[…]

My Sickle Life: Taming Sickle Cell.

I am an advocate and person living with Sickle Cell disease. Fortunately, I am educated and have the ability to find a job unlike many of the persons  living with sickle cell disease I meet through my advocacy activities. Beyond online advocacy, we go on outreaches to remote villages in the Ashanti region of Ghana. Read more about My Sickle Life: Taming Sickle Cell.[…]

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Curing Sickle Cell.

Disease, in our minds is not acceptable. We do not talk about it openly. We reject, refuse and pray away disease. In some cases, we blame people for their illnesses, after all there must be a reason. “One certainly must have offended some god or God to be ill”. Worse still are those said to Read more about Curing Sickle Cell.[…]

Sickle Cell Awareness Survey.

Please click the link below to answer 2 questions to help Sickle Life serve you better. Click here: Sickle Cell Awareness Survey.   (Please click this link: Sickle Cell Awareness Survey to complete the survey.) This survey is confidential and safe. You are not required to identify yourself. Please answer once and invite your friends and family to Read more about Sickle Cell Awareness Survey.[…]

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My Sickle Life: The Plan Had Changed!

Have you ever thought of or experienced anything that could change your life and cause a wave of worry and despair to the people that care about you? I have! I wish it were merely a disaster or an apocalyptic destruction or something that could be managed temporarily and not permanently distort my life. However, Read more about My Sickle Life: The Plan Had Changed![…]

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Loving Logically.

Love, according to the Merriam-Webster dictionary is a strong or constant affection for a person while logic, simply, is a proper or reasonable way of thinking about or understanding something. Conventional wisdom dictates that these two are mutually exclusive. After all, how can anyone attempt to be smart or logical about love? Lori Foster says, Read more about Loving Logically.[…]

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Remembering Paul… (2)

It’s hard to eulogize someone when the very process feels like ceding to a mutual enemy, but this is important. It must be done. Ours was not a chance encounter. Earliest I can remember, my mom would always encourage me to aspire to more and to be more. Disease was not a limitation, illness was Read more about Remembering Paul… (2)[…]

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Remembering Paul… (1)

Dr. Paul Mensah qualified as a medical doctor from the University of Ghana Medical School (UGMS) in 2002. He joined the Department of Haematology in April 2004 as a medical officer. He was an intelligent, hardworking and meticulous person who carried out his work with great passion. In October 2007, he became the first person Read more about Remembering Paul… (1)[…]