MENTORS MATTER!

Dr. Buadu (Sickle Life) and Medical Students (facing camera) interacting with clients at the adolescent clinic. ​Living with a chronic medical condition is quite difficult for children and especially difficult through adolescence as young people transition into adulthood. We often begin to wonder why we are different, why us in particular, why so many medications to[…]

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WORLD SICKLE CELL DAY, 2017- Know Your Sickle Status Now.

World Sickle Cell Day is commemorated annually on the 19th June to draw attention to Sickle Cell Disease globally. In 2017, The Information Services Department (ISD), Obuasi district organized a number of events from Monday 19th to Friday 23rd June 2017 to draw attention to this condition within the district. Under the theme, “KNOW YOUR[…]

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Sickle Life- Review. 

​Republished with permission of Daniel Nyakutsey. This article was first published by Daniel Nyakutsey via www. sicklecellwelfareforum.com on December 26, 2016. I visit Ghana when I can to at the very least enjoy the sun, sea, the tasty food and as a reality check for myself. On my most recent trip, I had the honour[…]

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2016.

“The heart of a volunteer is not measured in size, but by the depth of the commitment to make a difference in the lives of others.” ~ DeAnn Hollis. 2016 was truly an impressive year for Sickle Life in many respects. Beyond the formalization of our activities as a non-governmental organization in Ghana and successful[…]

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WINTER HAS COME!!!

Well, not really and no this is not a Game of Thrones review. More accurately the harmattan has arrived. If you live in West Africa though, this is all the winter you get. The harmattan, which begins from November and ends in March is a dry dusty wind which blows from the Northeast and West[…]

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World Sickle Cell Day Report- 2016.

    Hello everyone, it’s been quite an interesting week in Ghana. Congratulations to Ghanaians for generally peaceful elections and the ongoing transition process. We at Sickle Life are earnestly looking forward to 2017 with all the opportunities it holds. First however, we need to address the elephant in the room, The 2016 World Sickle[…]

Team Care Slashes Deaths From Pregnancy In Sickle Cell Anemia in Ghana. 

 http://www.forbes.com/sites/elaineschattner/2016/12/04/team-care-slashes-the-maternal-death-rate-in-sickle-cell-anemia/#53d8a64134c1 Life saving Sickle Cell Research making real impact in Ghana.  We are glad to see this work published and have quantifiable outcomes that improve the lives of persons living with Sickle Cell Disease. We hope for more of such interventions across several medical disciplines to further improve the quality of life of patients. Congratulations[…]

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Launch of National Healthcare Quality Strategy (NQS). 

A SPEECH PRESENTED BY DR. SEFAKOR ENAM BANKAS ON “LISTENING AND HEARING THE PATIENT’S VOICE IN THE CARE PROCESS ALL THE TIME” ON THE OCCASION OF THE LAUNCH OF THE NATIONAL HEALTH QUALITY STRATEGY (NQS) AT THE LA PALM ROYAL BEACH HOTEL ON THURSDAY, 1st DECEMBER 2016. Mr. Chairman; Representative of the Honorable Minister of Health; Chief[…]

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August – November 2016

    Hello everyone! It’s been a while hasn’t it? We trust you have been well. For all our followers via sicklelife.org only, it may seem like an eternity but we assure you, Sickle Life has been working behind the scenes to create awareness about Sickle Cell Disease. Do follow us on Social media (Facebook-Sickle Life, Instagram/ Twitter-[…]

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OPEN LETTER: To Whom It May Concern.

I saw a kid die yesterday. No, it was two days ago, two days to put my thoughts together. You probably saw him die too. You might assume this is normal for me, I am after all a medical doctor. You most certainly would be mistaken. I.Saw.A.Kid.Die.Yesterday!

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Defying Sickle Cell Disease; My Journey Of Victories.

My name Sefakor means “God comforts” my other name Enam means “God has given”. My life has been a series of testimonies and I have found the comfort of God in times I needed it. I’ve had it good compared to others; being born with Sickle Cell Disease brings many odds that stack against a[…]

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World Sickle Cell Day, June 19th.

The World Health Organization (WHO)  through World Health Days draws attention to various medical conditions and other public health concerns. Examples of these include World Malaria, Breast Feeding, AIDS, Blood Donor and Toilet Day to mention a few. World Health Days and the global commemorations associated with them, draw attention to specific health needs and may[…]

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Do You Know About Sickle Cell Disease?

Do you know about Sickle Cell Disease?Ever wondered what a person living with Sickle Cell Disease thinks about the condition? Have you spent some time with a child living with Sickle Cell Disease? Did they have any information about the condition? Several years ago, I spent some time at the paediatric Sickle Cell Clinic. It[…]

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Folic Acid.

Sickle Cell Disease is characterised by a reduction in the lifespan of Red Blood Cells. These Red Blood Cells are responsible for carrying oxygen to various parts of the body. Normal Red Blood Cells have a lifespan of about 120 days. In patients with Sickle Cell Disease/Anaemia, this is reduced. The Red Blood Cells breakdown[…]

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THE SICKLING TEST.

Narratives (after a sickling test): Health worker: Your sickling test is positive, which means you have Sickle Cell Disease. Patient: That explains why I am always ill. Health worker: Your sickling test is positive, which means you have Sickle Cell Disease. Patient: Are you sure, but I hardly fall sick. Health worker: Your sickling test is[…]

My Sickle Life: Combating Sickle Cell through Awareness.

We are invisible, so they think; We seem to be well,  yet we are not fit; Invisible as you may think we are, You may be right; Especially when looking between the coloured lines of our numerous intravenous infusions; When seeing through the pain we go through; And when our eyes are filled with weakness.[…]

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COMBATING SICKLE CELL THROUGH AWARENESS- The FGCHT experience.

Under the auspices of His Lordship, Most Reverend Bishop Agyekum Afrira, the Federation of Ghana Catholic Health Trainees (FGCHT), held their 15th annual congress at the Don Bosco Training Institute in Accra from the 14th to 17th of April 2016 on the theme COMBATING SICKLE CELL DISEASE THROUGH AWARENESS. A Sickle Cell awareness talk was[…]

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HAEMOGLOBIN VARIANT ESTIMATION.

Requests for haemoglobin variant estimation are common in health care delivery in Ghana. This investigation is generally referred to as Hb electrophoresis because of the method employed in testing. The principle of this test is based on separation of blood components based on the molecular mass (weight) of substances and their speed through a medium[…]

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My Sickle Life: Preparing For The Unexpected.

Living with a chronic medical condition like Sickle Cell Disease is a very tedious balancing act. There are several variables and too many moving parts which make staying healthy almost impossible. Every action must be taken with complete consideration of its potential to cause illness or affect health. Will it rain tomorrow, will I have[…]

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The Sompre Experience.

I was forced to believe INSPYA had been in existence for more than 10 years. The connection was great, too many nice people under one umbrella~ Nii Otto (INSPYA) The Sompre Project organized by INSPYA Ghana was an amazing experience for the Sickle Life team. Collaborating with the Jessy Dadzie Foundation as health partners, the[…]

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My Sickle Life: The Pain.

I woke up in the middle of the night drenched in sweat, in excruciating pain. The pain was located over the centre of my chest and I knew this was definitely a bad sign. The night was about to get long. Really long. Having experienced this several times before, I braced myself for the worst.[…]

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My Sickle Life: The Story of My Life.

For as far as I can remember, I have always known I had Sickle Cell Disease. My dad is a doctor and my mom is a nurse so from a young age I have always understood some basic concepts about the disease. What I did not understand however, was why it had to be me.[…]

My Sickle Life: Taming Sickle Cell.

I am an advocate and person living with Sickle Cell disease. Fortunately, I am educated and have the ability to find a job unlike many of the persons  living with sickle cell disease I meet through my advocacy activities. Beyond online advocacy, we go on outreaches to remote villages in the Ashanti region of Ghana.[…]

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Curing Sickle Cell.

Disease, in our minds is not acceptable. We do not talk about it openly. We reject, refuse and pray away disease. In some cases, we blame people for their illnesses, after all there must be a reason. “One certainly must have offended some god or God to be ill”. Worse still are those said to[…]

Sickle Cell Awareness Survey.

Please click the link below to answer 2 questions to help Sickle Life serve you better. Click here: Sickle Cell Awareness Survey.   (Please click this link: Sickle Cell Awareness Survey to complete the survey.) This survey is confidential and safe. You are not required to identify yourself. Please answer once and invite your friends and family to[…]

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My Sickle Life: The Plan Had Changed!

Have you ever thought of or experienced anything that could change your life and cause a wave of worry and despair to the people that care about you? I have! I wish it were merely a disaster or an apocalyptic destruction or something that could be managed temporarily and not permanently distort my life. However,[…]

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Loving Logically.

Love, according to the Merriam-Webster dictionary is a strong or constant affection for a person while logic, simply, is a proper or reasonable way of thinking about or understanding something. Conventional wisdom dictates that these two are mutually exclusive. After all, how can anyone attempt to be smart or logical about love? Lori Foster says,[…]

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Remembering Paul… (3)

To Paul I think of you brother I wonder what silence Enshrouds you there Where time has stopped And moments once shared When you were here Hang frozen on walls of time Treasured memories That only we who loved you Have I think of you Paul You’re no more here I look away from the[…]

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Remembering Paul… (2)

It’s hard to eulogize someone when the very process feels like ceding to a mutual enemy, but this is important. It must be done. Ours was not a chance encounter. Earliest I can remember, my mom would always encourage me to aspire to more and to be more. Disease was not a limitation, illness was[…]

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Remembering Paul… (1)

Dr. Paul Mensah qualified as a medical doctor from the University of Ghana Medical School (UGMS) in 2002. He joined the Department of Haematology in April 2004 as a medical officer. He was an intelligent, hardworking and meticulous person who carried out his work with great passion. In October 2007, he became the first person[…]