I was forced to believe INSPYA had been in existence for more than 10 years. The connection was great, too many nice people under one umbrella~ Nii Otto (INSPYA) The Sompre Project organized by INSPYA Ghana was an amazing experience for the Sickle Life team. Collaborating with the Jessy Dadzie Foundation as health partners, the Read more about The Sompre Experience.[…]
I woke up in the middle of the night drenched in sweat, in excruciating pain. The pain was located over the centre of my chest and I knew this was definitely a bad sign. The night was about to get long. Really long. Having experienced this several times before, I braced myself for the worst. Read more about My Sickle Life: The Pain.[…]
INSPYA (Inspiring Youth Achievement) in line with its aim of encouraging, supporting and inspiring young people to achieve their ambitions is embarking on a mentorship and education trip to Sompre and its surrounding communities within the Wassa Amenfi West District of the Western Region of Ghana from Thursday the 17th of March to Sunday 20th Read more about THE SOMPRE PROJECT.[…]
For as far as I can remember, I have always known I had Sickle Cell Disease. My dad is a doctor and my mom is a nurse so from a young age I have always understood some basic concepts about the disease. What I did not understand however, was why it had to be me. Read more about My Sickle Life: The Story of My Life.[…]
Sunday June 19th 2016- WORLD SICKLE CELL DAY. Details to be provided soon. Thank-you.
A group of medical students from the University of Ghana School of Medicine and Dentistry engendered by the loss of their patient to Sickle cell disease started the #SickleCellAwareness campaign. Sickle Life, like many others concerned about sickle cell disease in Ghana, joined the campaign and saw it rise to a twitter trend on Saturday 6th Read more about #SickleCellAwareness[…]
I am an advocate and person living with Sickle Cell disease. Fortunately, I am educated and have the ability to find a job unlike many of the persons living with sickle cell disease I meet through my advocacy activities. Beyond online advocacy, we go on outreaches to remote villages in the Ashanti region of Ghana. Read more about My Sickle Life: Taming Sickle Cell.[…]
Disease, in our minds is not acceptable. We do not talk about it openly. We reject, refuse and pray away disease. In some cases, we blame people for their illnesses, after all there must be a reason. “One certainly must have offended some god or God to be ill”. Worse still are those said to Read more about Curing Sickle Cell.[…]